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Category: My Weekly Lupus Diary

Home / My Weekly Lupus Diary
poor circulation on hands
My Weekly Lupus Diary

More Iloprost Too Soon

by Emma Hurrenupdated on 12th April 202612th April 2026

Hey, hope you’ve all had one lovely Easter! Just before Easter, we headed down to Devon in our campervan for a week. It was lovely and very wholesome. The weather – well it was typical British weather. But we made the most of it. In fact, with the wolf behaving so well, we did a …

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Esomprazole medication
My Weekly Lupus Diary

Reducing My PPI: Esomeprazole

by Emma Hurrenupdated on 8th March 20268th March 2026

Hey, hope your all well! This morning I went to watch my niece’s first dance show. She’s only 4, but she’s a cute little ballerina. It brought back so many happy memories from the days when I used to dance. But also, reminded me how much I miss it all. How much I miss teaching, …

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women in hospital having an infusion
My Weekly Lupus Diary

A Split Week of Iloprost

by Emma Hurrenupdated on 8th February 20268th February 2026

Another round of Iloprost ticked off! Oh, I am so glad it’s all over until next time! This round of Iloprost was a bit different to previous rounds. Instead of receiving my Iloprost over 5 consecutive days, I had it spread over two weeks due to bed availability. Honestly, I didn’t like it! I had …

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women stood next to Loch Morlich in the snow
My Weekly Lupus Diary

Iloprost Has Been Delayed

by Emma Hurrenupdated on 18th January 202618th January 2026

Hello! Hope you all had a lovely Christmas and New Year. We headed to the Cairngorms National Park, in Scotland for the New Year. Oh, what an incredible start to 2026 it was! We had bagpipes playing Auld Lang Syne as we welcomed in 2026 in a little ski bar at the campsite. We then …

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antibiotics and steroids
My Weekly Lupus Diary

A Horrible Chest Infection

by Emma Hurrenupdated on 14th December 202514th December 2025

Hope you’re all having a very festive start to December! Honestly, I can’t believe how quick this month is going! Every year, December flies by that quickly, I never feel like I have enough time to fully enjoy the festive period. A week ago, we got back from a fabulous trip to Estonia. It’s a …

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My Weekly Lupus Diary

Dry Sinuses, Low Iron, and Poor Circulation

by Emma Hurrenupdated on 16th November 202516th November 2025

Hope you’re all having a lovely weekend! I haven’t done a lot this weekend, other than having a big clear-out on clothes I haven’t worn for years. Something I’ve been wanting to do for a while. So it feels pretty good to finally get that ticked off the never-ending list of jobs! Last weekend, my …

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sunset
My Weekly Lupus Diary

The Wolf in New England

by Emma Hurrenupdated on 26th October 202526th October 2025

Hey! Hope you’re all well! I had a fantastic trip to New England! The autumn colours out there are just something else! I’ve never seen such a colourful, vibrant autumn palette before. It was, honestly, truly spectacular! If you are a big autumn lover, and enjoy travelling/road tripping, New England needs to get added to …

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Coffee mug and Prednisolone steroids for lupus
My Weekly Lupus Diary

I’ve Done It! My Biggest Achievement Of The Year!

by Emma Hurrenupdated on 14th September 202514th September 2025

Well……..almost done it! Today, I’m almost at the end of week 3. Just one week left to go, and I can celebrate the success of tapering down my Prednisolone from 7mg to 5mg. Something only a few months ago, I thought was impossible to do! Something I felt I was never going to achieve! But …

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Methotrexate
My Weekly Lupus Diary Uncategorised

Celebrating The Halfway Mark – Tapering Steroids

by Emma Hurrenupdated on 3rd August 20253rd August 2025

I’m halfway through my four long months of steroid tapering! Honestly, I cannot believe it! It hasn’t been an easy two months getting to this point, but for the first time, it feels achievable! Getting to my goal of 5mg of Prednisolone has felt more doable than ever before! And I think it’s all thanks …

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tablets and injection
My Weekly Lupus Diary

3 Weeks Into Tapering My Steroids

by Emma Hurrenupdated on 6th July 20256th July 2025

It’s been a tough 3 weeks, but I haven’t given up! It’s the furthest I’ve ever gone trying to taper my steroids down below 7mg, and that in itself is an achievement! I knew tapering down my Prednisolone was never going to be an easy ride! I knew I would be spending long days battling …

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