Travel Blogs – Hiking Trails – Chronic Illness Diaries
Hi! This weather the UK is having right now?! I hope you are all staying cool and hydrated. And remember Lupus warriors, get your factor 50 and sunhat on! Last thing you want, is this lovely sunshine sending you into a flare. We are currently getting ourselves ready for our big Pyrenees trip in the …
Hey, hope you’ve all had one lovely Easter! Just before Easter, we headed down to Devon in our campervan for a week. It was lovely and very wholesome. The weather – well it was typical British weather. But we made the most of it. In fact, with the wolf behaving so well, we did a …
Hey, hope your all well! This morning I went to watch my niece’s first dance show. She’s only 4, but she’s a cute little ballerina. It brought back so many happy memories from the days when I used to dance. But also, reminded me how much I miss it all. How much I miss teaching, …
Another round of Iloprost ticked off! Oh, I am so glad it’s all over until next time! This round of Iloprost was a bit different to previous rounds. Instead of receiving my Iloprost over 5 consecutive days, I had it spread over two weeks due to bed availability. Honestly, I didn’t like it! I had …
Hello! Hope you all had a lovely Christmas and New Year. We headed to the Cairngorms National Park, in Scotland for the New Year. Oh, what an incredible start to 2026 it was! We had bagpipes playing Auld Lang Syne as we welcomed in 2026 in a little ski bar at the campsite. We then …
Hope you’re all having a very festive start to December! Honestly, I can’t believe how quick this month is going! Every year, December flies by that quickly, I never feel like I have enough time to fully enjoy the festive period. A week ago, we got back from a fabulous trip to Estonia. It’s a …
Hope you’re all having a lovely weekend! I haven’t done a lot this weekend, other than having a big clear-out on clothes I haven’t worn for years. Something I’ve been wanting to do for a while. So it feels pretty good to finally get that ticked off the never-ending list of jobs! Last weekend, my …
Hey! Hope you’re all well! I had a fantastic trip to New England! The autumn colours out there are just something else! I’ve never seen such a colourful, vibrant autumn palette before. It was, honestly, truly spectacular! If you are a big autumn lover, and enjoy travelling/road tripping, New England needs to get added to …
Well……..almost done it! Today, I’m almost at the end of week 3. Just one week left to go, and I can celebrate the success of tapering down my Prednisolone from 7mg to 5mg. Something only a few months ago, I thought was impossible to do! Something I felt I was never going to achieve! But …
I’m halfway through my four long months of steroid tapering! Honestly, I cannot believe it! It hasn’t been an easy two months getting to this point, but for the first time, it feels achievable! Getting to my goal of 5mg of Prednisolone has felt more doable than ever before! And I think it’s all thanks …