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Tag: Chronic Illness

Home / Chronic Illness(Page 2)
Methotrexate
My Weekly Lupus Diary Uncategorised

Celebrating The Halfway Mark – Tapering Steroids

by Emma Hurrenupdated on 3rd August 20253rd August 2025

I’m halfway through my four long months of steroid tapering! Honestly, I cannot believe it! It hasn’t been an easy two months getting to this point, but for the first time, it feels achievable! Getting to my goal of 5mg of Prednisolone has felt more doable than ever before! And I think it’s all thanks …

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tablets and injection
My Weekly Lupus Diary

3 Weeks Into Tapering My Steroids

by Emma Hurrenupdated on 6th July 20256th July 2025

It’s been a tough 3 weeks, but I haven’t given up! It’s the furthest I’ve ever gone trying to taper my steroids down below 7mg, and that in itself is an achievement! I knew tapering down my Prednisolone was never going to be an easy ride! I knew I would be spending long days battling …

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Prednisolone
My Weekly Lupus Diary

So Much Going On!

by Emma Hurrenupdated on 22nd June 202522nd June 2025

Hi! Hope you’ve all had a wonderful weekend, and coped ok in the crazy heat we had yesterday! Not only was it the hottest day of the year, but the longest day of year too. Honestly, I’m not sure if I’m quite ready for the long days to start drawing in quite yet! I’ve got …

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hospital
My Weekly Lupus Diary

Poor Veins and Iloprost

by Emma Hurrenupdated on 8th June 20258th June 2025

I’m very tired and exhausted, but I’ve just ticked off another round of Iloprost! I’ve talked about it on here many times before, how tourchest Iloprost infusions are. How you are literally torturing your body for 6 hours, trying to push your body to tolerate the maximum dose possible. How you’re fighting jaw pain, migraines, …

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bruised arm and injections
My Weekly Lupus Diary Uncategorised

Iloprost Tomorrow

by Emma Hurrenupdated on 1st June 20251st June 2025

Good morning! 🙂 Tomorrow, I go in to hospital for 5 days of Iloprost. Can’t say I’m looking forward to it. But I keep telling myself, this time next week it be all over with, and then I can just relax, enjoy summer, sand hopefully have a bit of relief with the pain in my …

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SUP
My Weekly Lupus Diary

Increasing My Mexthotrexate

by Emma Hurrenupdated on 25th May 202525th May 2025

I’m home from what’s been the most incredible trip to the Isle of Mull! We had gorgeous weather, the wolf behaved, and we created many long-lasting memories! We honestly couldn’t of asked for a better trip! Here’s a little photo dump of some of favourite moments: Not Strong Enough for Mountains I wasn’t well enough …

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Amlodipine
My Weekly Lupus Diary

Trialing Amlodipine For My Raynaud’s

by Emma Hurrenupdated on 11th May 202511th May 2025

Hey! It’s been a little while since I’ve talked to you all! Life has been soooo busy lately! We’ve been renovating our hallway, stairs, and landing, and what a big job it has been! Literally, I’ve spent every weekend for the last few weeks with a paintbrush in my hand. But it’s looking good, and …

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Women sat in camera van
My Weekly Lupus Diary

Life at the Minute

by Emma Hurrenupdated on 6th April 20256th April 2025

Hello! Hope you are all well! This weather is absolutely gorgeous at the minute! Spring really has given us a fantastic start! We got all our back garden power-washed this week, ready for the summer. I did however manage to send the powerwasher up in smoke, not sure how. One blessing, it happened right at …

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hand ulcers and tablets
My Weekly Lupus Diary

Tapering Steroids And Hand Ulcers

by Emma Hurrenupdated on 9th March 20259th March 2025

Hello! Isn’t the weather lovely at the moment? We’ve had beautiful blue skies, some gorgeous sunrises, and it’s been feeling a lot milder. Oh and I’ve even noticed the daffidols are starting to bloom! All this is making me feel pretty excited for Spring! Life has been pretty hectic lately! We’ve been renovating our living …

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Raynauds
My Weekly Lupus Diary

All About Raynaud’s

by Emma Hurrenupdated on 17th February 202517th February 2025

Welcome to Raynaud’s Awareness Month! February is the month to spread awareness and educate the world about a horrible condition that is so misunderstood, yet affects such a large percentage of the world’s population! An illness that can cause excruciating pain, be serious for some, yet only can be treated but not cured! So this …

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