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Tag: Belimumab

Home / Belimumab
My Weekly Lupus Diary

Belimumab Is Back!

by Emma Hurrenupdated on 26th January 202526th January 2025

Hello! I hope you’re having a great weekend! Can you believe it’s almost the end of January already? It’s been quite a crazy month for me! A month full of good and bad moments! I’ve been on a fun, snowy adventure in Casper. But the trip sadly ended a day early when we ran out …

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Hatta, UAE
My Weekly Lupus Diary

Devastating News at Christmas

by Emma Hurrenupdated on 5th January 20255th January 2025

Happy New Year guys! I hope you all had a wonderful Christmas and a great start to 2025! We had a wonderful trip to Kuwait and Dubai for Christmas! The weather was perfect! The temperature hovered around the mid-20s, not too hot, and not too cold! We woke up on Christmas Day morning with a …

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Lupus
My Weekly Lupus Diary

A Little Update On Everything

by Emma Hurrenupdated on 1st September 20241st September 2024

Happy 1st of September! This week’s blog is a little summary of everything. An update on how I’m doing since starting my new treatment just over 12 weeks ago. The period of time it takes for the biological to work. Then after this week’s blog, I will be logging off until the end of September, …

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vanlife
My Weekly Lupus Diary

Belimumab my ‘Miracle Drug’

by Emma Hurrenupdated on 30th June 202430th June 2024

Hope you’re all having a lovely Sunday! Two weeks ago, I talked about how the second dose of my new treatment, Belimumab had left me feeling pretty rotten. Well, I have some great news to share! The side effects are easing, and things have improved. Not just by a little bit, but by A LOT! …

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Belimumab
My Weekly Lupus Diary

My First Two Doses Of Belimumab (Benlysta)

by Emma Hurrenupdated on 16th June 202416th June 2024

It’s been an interesting two weeks! Two weeks full of so many different emotions! I had the excitement, with the fact I finally was starting a new treatment I had long waited for. Yet, a treatment that has left me feeling pretty rotten! The Long Journey At the back end of last year, I was …

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Lupus
My Weekly Lupus Diary

Belimumab – The 2nd Patient To Ever Recieve It In My Trust

by Emma Hurrenupdated on 5th May 20245th May 2024

Hope you’re all having a lovely bank holiday weekend! We haven’t gone away this weekend, despite the lovely weather forecast! I’m not particularly well at the minute, and we travel to Albania next weekend. So this weekend I wanted to be at home, resting as much as I can, and getting myself ready for my …

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Lupus
My Weekly Lupus Diary

A Bit of Good News

by Emma Hurrenupdated on 3rd March 20243rd March 2024

Hope you’re all having a wonderful weekend! I’ve had quite a bad weekend pain and fatigue-wise. The wolf has been extra angry with me, and I’m not sure why! I was in bed before sunset last night, which felt rather odd! I know the days are getting longer, but they’re not that long yet! But …

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My Weekly Lupus Diary

Preparation For Belimumab

by Emma Hurrenupdated on 14th November 202421st January 2024

Hope you are all staying safe in the wild Storm Isha! Last weekend we had such a lovely weekend in the Lake District National Park, in our camper van, Casper. We climbed two little Wainwrights, which was enough for my body right now! My body just isn’t strong enough for any big mountains at the …

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