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Tag: Chronic Illness

Home / Chronic Illness(Page 4)
beach
My Weekly Lupus Diary

Tapering of Steroids Going Well

by Emma Hurrenupdated on 28th July 202428th July 2024

Hope you’re all having a great weekend! I’ve had a busy few weeks, but it’s been lovely! Last weekend, we went away in the van to the coast, which was lovely. The weekend before, we were away celebrating my Grandma’s big 90th birthday with all the family. I can’t believe it’s August next week! I …

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vanlife
My Weekly Lupus Diary

Belimumab my ‘Miracle Drug’

by Emma Hurrenupdated on 30th June 202430th June 2024

Hope you’re all having a lovely Sunday! Two weeks ago, I talked about how the second dose of my new treatment, Belimumab had left me feeling pretty rotten. Well, I have some great news to share! The side effects are easing, and things have improved. Not just by a little bit, but by A LOT! …

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Belimumab
My Weekly Lupus Diary

My First Two Doses Of Belimumab (Benlysta)

by Emma Hurrenupdated on 16th June 202416th June 2024

It’s been an interesting two weeks! Two weeks full of so many different emotions! I had the excitement, with the fact I finally was starting a new treatment I had long waited for. Yet, a treatment that has left me feeling pretty rotten! The Long Journey At the back end of last year, I was …

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Aurora
My Weekly Lupus Diary

The Sky Lit Up Purple For World Lupus Day

by Emma Hurrenupdated on 9th June 20249th June 2024

Happy Sunday guys! Hope you are all well! It’s been a few weeks since I last wrote a blog. Life has just been so busy lately, and for a good reason too! So, I’ve got a lot to fill you on and some very good news to share! 🙂 Friday 10th May But let’s start …

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Lupus
My Weekly Lupus Diary

Belimumab – The 2nd Patient To Ever Recieve It In My Trust

by Emma Hurrenupdated on 5th May 20245th May 2024

Hope you’re all having a lovely bank holiday weekend! We haven’t gone away this weekend, despite the lovely weather forecast! I’m not particularly well at the minute, and we travel to Albania next weekend. So this weekend I wanted to be at home, resting as much as I can, and getting myself ready for my …

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hospital
My Weekly Lupus Diary

My Week In Hospital Having Iloprost

by Emma Hurrenupdated on 28th April 202428th April 2024

Hope you’re all having a great weekend! I’ve been feeling a little rough after my Spring Covid Booster. But at least it’s done now for another 6 months! It’s weird how some I’ve fine after, and some I haven’t! But I guess it hasn’t helped this time, my body not feeling particularly strong at the …

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Eternal Flame Falls, New York
My Weekly Lupus Diary

Another Round of Iloprost

by Emma Hurrenupdated on 14th April 202414th April 2024

Hello, long time no speak! Hope you are all well! I decided to take an extra week off from my blogs after my trip to Canada. Our trip to Canada was amazing, despite my health not being as strong as I would have liked. We made the most out of the bad situation! I’m not …

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Severe Raynauds
My Weekly Lupus Diary

A National Shortage of Belimumab

by Emma Hurrenupdated on 17th March 202417th March 2024

Hope you’ve all had a great week! I spent my Sunday morning having a Colposcopy. My first ever appointment on a Sunday! Not my first Colposcopy though! Unfortunately, I’ve been attending these for the past 5 years or more, and likely to be continued. I always test positive for the HPV virus and Low-grade Dyskaryosis. …

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Lupus
My Weekly Lupus Diary

A Bit of Good News

by Emma Hurrenupdated on 3rd March 20243rd March 2024

Hope you’re all having a wonderful weekend! I’ve had quite a bad weekend pain and fatigue-wise. The wolf has been extra angry with me, and I’m not sure why! I was in bed before sunset last night, which felt rather odd! I know the days are getting longer, but they’re not that long yet! But …

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coast sunset
My Weekly Lupus Diary

Experiencing My First Ever MRI

by Emma Hurrenupdated on 25th February 202425th February 2024

Hope you’re all having a great weekend! It’s great to finally see a bit of sunshine! Yesterday evening, we headed to the coast to capture the sunset and watch the full moon rise. It was such a beautiful evening! There’s just something about being at the coast, hearing the waves crash against the shore, I …

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