Hey, hope you’ve all had one lovely Easter! Just before Easter, we headed down to Devon in our campervan for a week. It was lovely and very wholesome. The weather – well it was typical British weather. But we made the most of it. In fact, with the wolf behaving so well, we did a …
Iloprost Has Been Delayed
Hello! Hope you all had a lovely Christmas and New Year. We headed to the Cairngorms National Park, in Scotland for the New Year. Oh, what an incredible start to 2026 it was! We had bagpipes playing Auld Lang Syne as we welcomed in 2026 in a little ski bar at the campsite. We then …
Poor Veins and Iloprost
I’m very tired and exhausted, but I’ve just ticked off another round of Iloprost! I’ve talked about it on here many times before, how tourchest Iloprost infusions are. How you are literally torturing your body for 6 hours, trying to push your body to tolerate the maximum dose possible. How you’re fighting jaw pain, migraines, …
Iloprost Tomorrow
Good morning! đ Tomorrow, I go in to hospital for 5 days of Iloprost. Can’t say I’m looking forward to it. But I keep telling myself, this time next week it be all over with, and then I can just relax, enjoy summer, sand hopefully have a bit of relief with the pain in my …
Increasing My Mexthotrexate
I’m home from what’s been the most incredible trip to the Isle of Mull! We had gorgeous weather, the wolf behaved, and we created many long-lasting memories! We honestly couldn’t of asked for a better trip! Here’s a little photo dump of some of favourite moments: Not Strong Enough for Mountains I wasn’t well enough …
Sucessful Week Of Iloprost And A Rough Recovery
I’m not having a good weekend! I’m sat in my bed writing this blog, with no plans to get out dressed today or even leave this bed. I’m dealing with one angry, unhappy wolf! He’s angry because of the stress I put him through with my Iloprost! He does this to me, nearly every time, …
A Little Update On Everything
Happy 1st of September! This week’s blog is a little summary of everything. An update on how I’m doing since starting my new treatment just over 12 weeks ago. The period of time it takes for the biological to work. Then after this week’s blog, I will be logging off until the end of September, …
Belimumab – The 2nd Patient To Ever Recieve It In My Trust
Hope you’re all having a lovely bank holiday weekend! We haven’t gone away this weekend, despite the lovely weather forecast! I’m not particularly well at the minute, and we travel to Albania next weekend. So this weekend I wanted to be at home, resting as much as I can, and getting myself ready for my …
My Week In Hospital Having Iloprost
Hope you’re all having a great weekend! I’ve been feeling a little rough after my Spring Covid Booster. But at least it’s done now for another 6 months! It’s weird how some I’ve fine after, and some I haven’t! But I guess it hasn’t helped this time, my body not feeling particularly strong at the …
Another Round of Iloprost
Hello, long time no speak! Hope you are all well! I decided to take an extra week off from my blogs after my trip to Canada. Our trip to Canada was amazing, despite my health not being as strong as I would have liked. We made the most out of the bad situation! I’m not …