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Tag: Raynuads

Home / Raynuads
hospital
My Weekly Lupus Diary

Poor Veins and Iloprost

by Emma Hurrenupdated on 8th June 20258th June 2025

I’m very tired and exhausted, but I’ve just ticked off another round of Iloprost! I’ve talked about it on here many times before, how tourchest Iloprost infusions are. How you are literally torturing your body for 6 hours, trying to push your body to tolerate the maximum dose possible. How you’re fighting jaw pain, migraines, …

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Women sat in camera van
My Weekly Lupus Diary

Life at the Minute

by Emma Hurrenupdated on 6th April 20256th April 2025

Hello! Hope you are all well! This weather is absolutely gorgeous at the minute! Spring really has given us a fantastic start! We got all our back garden power-washed this week, ready for the summer. I did however manage to send the powerwasher up in smoke, not sure how. One blessing, it happened right at …

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hand ulcers and tablets
My Weekly Lupus Diary

Tapering Steroids And Hand Ulcers

by Emma Hurrenupdated on 9th March 20259th March 2025

Hello! Isn’t the weather lovely at the moment? We’ve had beautiful blue skies, some gorgeous sunrises, and it’s been feeling a lot milder. Oh and I’ve even noticed the daffidols are starting to bloom! All this is making me feel pretty excited for Spring! Life has been pretty hectic lately! We’ve been renovating our living …

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Raynauds
My Weekly Lupus Diary

All About Raynaud’s

by Emma Hurrenupdated on 17th February 202517th February 2025

Welcome to Raynaud’s Awareness Month! February is the month to spread awareness and educate the world about a horrible condition that is so misunderstood, yet affects such a large percentage of the world’s population! An illness that can cause excruciating pain, be serious for some, yet only can be treated but not cured! So this …

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Severe Raynauds
My Weekly Lupus Diary

A National Shortage of Belimumab

by Emma Hurrenupdated on 17th March 202417th March 2024

Hope you’ve all had a great week! I spent my Sunday morning having a Colposcopy. My first ever appointment on a Sunday! Not my first Colposcopy though! Unfortunately, I’ve been attending these for the past 5 years or more, and likely to be continued. I always test positive for the HPV virus and Low-grade Dyskaryosis. …

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