I’m not having a good weekend! I’m sat in my bed writing this blog, with no plans to get out dressed today or even leave this bed. I’m dealing with one angry, unhappy wolf! He’s angry because of the stress I put him through with my Iloprost! He does this to me, nearly every time, …
My Week In Hospital Having Iloprost
Hope you’re all having a great weekend! I’ve been feeling a little rough after my Spring Covid Booster. But at least it’s done now for another 6 months! It’s weird how some I’ve fine after, and some I haven’t! But I guess it hasn’t helped this time, my body not feeling particularly strong at the …
The Painful Wait To Start The New Treatment
It’s been a long couple of weeks! A long couple of weeks of appointments, blood tests, phone calls, pain, and feeling like my life is just on hold. The wolf is angry, and without the treatment, he isn’t going to get happier. I know better days are coming! I know soon I’ll be back to …
Iloprost For Severe Raynaud’s
Happy New Year! Hope you all had a wonderful Christmas and New Year! We had such a lovely Christmas in Norway. We caught the cable car and watched the sunset at the top of the highest peak in Bergen, visited the World’s Largest Gingerbread City, went on the most magical boat trip through the Norwegian …
Hospital Eye Test
I hope you’re all having a lovely weekend! Last night we went to Flamborough to see the puffins and caught a lovely sunset. I kind of didn’t see any puffins, or well I thought I hadn’t. But when I looked back at my photos, I had somehow managed to capture one! My Eye Tests This …
Hospital In Serbia
I’m back! đ We’ve had such a fantastic couple of weeks touring the Balkans in our van, Casper! We saw some incredible waterfalls in Croatia, drank some incredible coffee in Bosnia, got blown away by the beauty in Serbia, and enjoyed sharing my shower with a green widow in Romania. Well…..maybe not quite enjoyed, but …
Reducing My Steroids/Hospital Appointment Update
It’s been a tough week! Each day is getting harder and harder. I knew reducing my steroids would never be an easy ride. I’ve tried to prepare myself as much as I can, but it doesn’t make it any easier. Reducing steroids after long-term use is so hard, physically, mentally, and emotionally! After seeing my …